low day

We woke up bright and early and hit the highway at 6am to take Audrey to her first appointment at Sick Kids Hospital. And although the day wasn't terrible, it wasn't good either. Audrey had another audiogram done that showed that her hearing has worsened in the past 1.5 months...not significantly, but still...worse.

Not what I wanted to hear. Especially since this means that it will most likely continue to get worse throughout her life.

Still no idea on what caused this. Her doctor would like to do a CT scan but we have decided to wait until she is a little bit older so that she wont need to be anaesthetized. They are also doing some testing on the blood that was taken at her heal prick test when she was a newborn to see if she may have been exposed to a virus in utero (CMV). I never imagined that we'd be having tests done on her newborn blood over 4 years later! Audrey will continue to be monitored at this amazing hospital and for this I am grateful.

Good news: Audrey is adjusting VERY well to her hearing aids. She is such a bright little girl and it is amazing how she is adapting to these machines on her ears!

Last night I went to my first Hands and Voices support group meeting for parents of children who are deaf/hard of hearing. It was nice to be in the company of other Mamas who are going through or have gone through THIS. What I'm dealing with. It was comforting and upsetting at the same time. The thing that I took out of this was that it is okay for me to feel sad because it is sad. It might not seem like a positive thing to take out of a meeting, but it really is.
Anyway, back to Audrey...I just dropped her off at school for the first time with her hearing aids!!! SOOOO SCARY! (for me! haha) I lurked in the parking lot to see how she was doing at recess and it didn't look good. The kids surrounded her and were poking at her ears. I'm sure that they were just curious and this will pass. But man, my heart ached. WHY OH WHY didn't I think to take her hair out of her pony!?!